NNHF activities in India

India 1: Establish a national network for paediatric patients

Partner institution
Sir Ganga Ram Hospital, Paediatric Haematology and Oncology/BMT Unit, New Delhi

Represented by
Dr Anupam Sachdeva, MD, Head, Pediatric Haematology Oncology Unit, BMT Unit

Duration
4.5 years, Q2 2009 - Q4 2013; completed

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India 2: IDEEA - Identification, Diagnosis, Education and Empowerment for Action of people with bleeding disorders in South India

Partner institution
Katsurba Hospital, Manipal University, Manipal

Represented by
Dr Annamma Kurien, Associate Dean, Professor of Pathology

Duration
4.5 years  Q1 2012 - Q3 2016; completed

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India 3: Spread awareness, building capacity, and diagnostics spectrum in haemophilia-(Spread ABCD Spectrum project) in northern India

Partner institution
Maulana Azad Medical College, New Delhi

Represented by
Prof Naresh Gupta, Director

Duration
3.5 years, Q2 2013 - Q4 2016; completed

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India 4: Leadership, Education, Information & Transmission (LEAD IT) - Training Programme for Empowerment of Hemophilia Care Givers and Women with bleeding disorders

Partner institution
Hemophilia Federation (India), New Delhi

Represented by
Mr Vikash Goel, Vice President 

Duration
2 years, Q3 2013 - Q3 2015; completed

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India 5: "BLOSSOM" a project to bring a ray of hope in the life of people with haemophilia

Partner institution
Karnataka Hemophilia Society (KHS)– a chapter of Hemophilia Federation (India)

Represented by
Dr. Suresh Hanagavadi, President

Duration
2 years, Q1 2014 - Q1 2016; completed

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India 6: Capacity building and empowerment programme for care givers and parents involved in haemophilia care in North East and North India

Partner institution
Haemophilia Federation India, New Delhi

Represented by
Mr Mukesh Garodia, Vice-President & Dr Richa Mohan HFI volunteer 

Duration
3 years, Q4 2014 - Q4 2017; completed

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India 7: Preventing and Decreasing Musculoskeletal Morbidities among People with Haemophilia in Southern India

Partner institution
Haemophilia Federation India 

Represented by
Dr Pamela Narayan, MD

Duration
3 years, started  Q2 2015; in execution

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India 8: Empowering parents in South and West India

Partner institution
Haemophilia Federation India and Empowering Minds Society for Research & Development

Represented by
Dr Richa Mohan, MD

Duration
2 years, started Q4 2016; in execution

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India 9: Identify, diagnose and empower people with haemophilia in West Bengal

Partner institution
Hemophilia Society Durgapur

Represented by
Roy Ajoy Roy, Vice president

Duration
3 years, started Q1 2018; in execution

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India Dhule project: India Dhule

Partner institution
Haemophilia Federation India, Dhule Chapter

Represented by
Harshal Kale, Project Coordinator

Duration
3 years, Q3 2013 - Q3 2016; completed

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India Youth Camp: Leadership and educational camp for young people with haemophilia and allied bleeding disorders in India

India Youth camps leadership

Partner institution
Hemophilia Federation India (HFI)

Represented by
Dr Kanjaksha Ghosh, President

Duration
3.5 years, Q2 2010 - Q4 2013; completed

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NNHF are supporting numerous projects and fellowships througout the world.