Partner institution:

Haemophilia Foundation of Uganda, Kampala

Represented by:

Agnes Kisakye, Executive Secretary

Duration:

2 years, envisaged start Q1 2019

Status:

Formalisation

• Improve patient management at 8 regional referral hospitals
• Increase diagnosis rate from 5% to 8% through awareness raising among traditional leaders, public and medical teams
• Register all people with bleeding disorders in an online registry
• Achieve inclusion of haemophilia into the non-communicable diseases programme and budget
• Improve diagnosis capacity in the North
• Strengthen the haemophilia care unit in the North to improve patient management
• Empower next generation of haemophilia community leaders