NNHF haemophilia healthcare framework

Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate the bleeding disorders healthcare situation within a country or region. This framework helps our partners and us identify the needs and create a tailored strategic plan to address those needs to improve access to care.

This is an overview of the NNHF Healthcare Framework through which we will guide you in the project application process.

 

• Infrastructure and care set-up 

• Organisation of care and referral system

• Treatment guidelines

• Patient flow

• Responsiveness and interest of HCPs

• Multidisciplinary care

• Knowledge and education of HCPs 

• Training opportunities for HCPs 

• Professional associations/committees  

• Networks of HCPs in bleeding disorders

 

• Number of laboratories and distribution 

• Types of tests available

• Patient flow for diagnosis 

• Diagnosis quality control (internal/external)

 

• IU/capita

• Treatment regimens 

• Treatment options and safety

• Supply and storage

• Adherence to treatment 

 

• Registry format and content

• Registry ownership and recognition 

• Data safety and quality

• Patient ID

• Number of people with bleeding disorders

 

• Healthcare system type

• Policy and legislation

• Government support

• Bleeding disorders included in health agenda and/or health policies

• Decision making

 

• Budgeting for haemophilia and bleeding disorders

• Resource allocation 

• Reimbursement levels 

• Percentage of out-of-pocket-payment

 

• Patient organisation set-up, sustainability and leadership

• Strategic planning

• Patient knowledge and access to information

• Level of patient empowerment

• Awareness capacity and strategic planning

• Advocacy capacity and strategic planning

• Collaboration between key stakeholders in the bleeding disorders community

 



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