Establishing a women’s group to lead change in Malaysia

23 January 2018

Empowering women to become leaders and to activate regional chapters within the patient organisation in Malaysia was the aim of the NNHF Malaysia 3 project, which started in 2016 and was finalised at the end of 2017.

With this aim the project team, led by Dr Jameela Sathar from the Ampang Hospital, worked to create awareness of women with bleeding and clotting disorders, to identify, educate and empower women leaders in order to provide support to activate regional chapters within the Haemophilia Society of Malaysia, and to establish a National Haemophilia and Coagulation Disorders Standards Board.

As healthcare professionals were often lacking the necessary knowledge to diagnose and provide care to women with bleeding disorders, the project team delivered training to 280 doctors, nurses and lab technicians. With the acquired knowledge and skills, healthcare professionals are now able to identify and refer women with bleeding disorders for diagnosis whenever necessary.

In April 2017, to coincide with World Haemophilia Day, the project team organised a media campaign to raise awareness about women with bleeding disorders and to advocate for better access to care in Malaysia.

“It is only teamwork and help from blood-brothers and sisters that made what seems a challenge and impossible tasks for me, to be possible,” shares Edwin Goh, Vice President of Haemophilia Society of Malaysia. 

To ensure the project’s impact is sustainable, the team developed a ‘Leadership manual for women’s groups’ to serve as a guide for communities both in Malaysia and across the world, on how a women’s group can lead change.  

To ensure the project’s impact is sustainable, the team developed a ‘Leadership manual for women’s groups’ to serve as a guide for communities both in Malaysia and across the world, on how a women’s group can lead change.  

Dowload the Women Leardership Training Manual: 

English

Malay

Should you wish to reproduce or translate the manual in parts or in its entirety, please mention the source as follows: "Material developed by the Haemophilia Society of Malaysia as part of the NNHF Malaysia 3 project with the support of the Novo Nordisk Haemophilia Foundation".

About this programme

For more information visit the project page or contact us