01 June 2018
This year we are proud to announce the winner of the NNHF Community Award 2018: Professor Johnny Mahlangu. Professor Mahlangu is director of the Haemophilia Comprehensive Care Centre in Johannesburg which provides care and support for people with bleeding disorders.
Throughout much of Africa, foundational elements of haemophilia care need to be established. A lack of expertise and infrastructure Comprehensive Care Centre Charlotte Maxeke Johannesburg Hospital and Department of Molecular Medicine and Haematology of the National Laboratory Service and the University of the Witwatersrand in Johannesburg, South Africa. And while he lives in South Africa, his impact has reached the entire continent.
In desperate need
As a continent, Africa is home to 20% of the world’s population and consists of 54 countries. However, a look at the resources dedicated to meeting that enormous need in healthcare shows that there is a make accurate diagnosis a challenge. When it is available, treatment is generally used as rescue therapy and administered in healthcare centres. Home therapy and prophylactic therapy are almost non-existent. Finally, there is a deep lack of knowledge among healthcare providers, people with haemophilia and communities.
To most, this sheer scope of the need would seem impossible to address. How can you make a change in a continent? Where do you begin to contribute making change that will matter?
Professor Mahlangu approached this challenge one step at a time.
Prof Mahlangu’s approach is based on his vision: building a shelter for haemophilia care where people with haemophilia are at the centre, with solid foundations consisting of medical committee and a roof of a national haemophilia programme supported by two pillars which are an active national patient organisation and cooperative healthcare authorities.
Over the past 15 years, step by step, he has led efforts in numerous countries to contribute addressing many of the mentioned issues. Prof Mahlangu teamed up with international and local organisations as well as a wide network of experts. The total effect was an improvement in care that affected 10 African countries.
Examine the incredible body of work:
Better care from physicians
Improved capacity for diagnosis
Establishing centres for care
"In addressing the challenges of bleeding disorders in Africa, it is the team work and mutiple partnerships that will take far. It is indeed a pleasure for many us living in Africa to work with the NNHF and people with haemophilia in advancing the course of care for inherited bleeding disorders in Africa,” shared Professor Mahlangu receiving the award at the WFH Congress on 23 May.
Prof Mahlangu’s has been dedicated to sharing expertise, building partnerships, and always putting people with bleeding disorders at the centre of his work.
He has been a catalyst for lasting and profound change across an entire continent. In the name of the bleeding disorders community, the NNHF is deeply thankful for his efforts. It is with great pride that we present Professor Johnny Mahlangu with the NNHF Community Award 2018.
Created in 2010, the NNHF Community Award is awarded to recognise persons who have shown outstanding voluntary engagement benefitting people with haemophilia and allied bleeding disorders in the developing world. The results of their engagement should have a long-term impact on the haemophilia & allied bleeding disorders community.