Partner: Shandong Centre of Haemophilia Diagnosis and Treatment, Jinan
Represented by: Prof Xinsheng Zhang, Director
Projet duration: 2.5 years, Q3 2014 - Q2 2017
25 January 2018
On the occasion of the NNHF 13th anniversary we are pleased to announce that the winner of the NNHF Project of the Year 2018 Award is the China 4 project.
Outstanding engagement in reaching out
The NNHF China 4 project is an outstanding example of how a strong network of dedicated experts can generate incredible impact, reaching out to people with haemophilia living in urban or rural areas who in the past had to travel up to 12 hours to access care.
The NNHF Project of the Year award recognises the systemic approach of the China 4 project team, their dedication to improving haemophilia care in the Shandong province, the precise reporting on progress and achievements, both within their network and with NNHF, as well as their strategic use of communications to raise awareness and share knowledge about haemophilia.
The power of the network
Building on the approach developed by the Haemophilia Treatment Centre Collaborative Network of China (HTCCNC) and adopted in the country since the NNHF China 2 project, the team, led by Prof Zhang Xinsheng, started with the identification of five city-level haemophilia centres in the Shandong province, where healthcare professionals would be trained in haemophilia diagnosis and care: Taian, Heze, Weifang, Linyi and Yantai.
As a haemophilia expert who has been working for decades in the area of bleeding disorders, Prof Zhang Xinsheng knew that there would be challenges in implementing the project activities, as support from governmental authorities was lacking. In December 2017 he shared with “The biggest challenge we had to face when we started was to convince authorities of the importance of haemophilia, when other diseases are considered more important."
Prof Zhang and his team succeeded not only in engaging with authorities to demonstrate how vital it is for people with haemophilia to receive adequate care, but also in establishing multidisciplinary haemophilia care in all the selected five cities of the Shandong province.
He formed a team of experts, bringing together the needed skills to train 359 healthcare professionals in the five cities in collaboration with nine national or regional leading centres*.
Furthermore, expert groups were established in the five provincial centres and 36 healthcare professionals received specialised training on the organisation of care comprising the patient registry, bleeding treatment, nursing, laboratory diagnosis, surgery, physiotherapy, orthopaedic work and psychology.
Teaming up to deliver better care and raise awareness
The China 4 project approach, relying on the coordinated efforts of each member of the network, proved to be highly successful. The team was able to involve all the key stakeholders in the five cities to achieve the objectives and create sustainable impact: healthcare professionals, people with haemophilia, families and governmental authorities.
“The network is a good model,” states Prof Zhang Xinsheng, “without a strong network in place, we would not have been able to support people with haemophilia in those five cities, diagnose new patients, and make multidisciplinary care available closer to them.”
Throughout the NNHF China 4 project, the team identified and registered 651 people with haemophilia - an increase of 36%. Furthermore, thanks to their engagement to share knowledge and raise awareness among the population, 320 people with haemophilia and family members received education about the condition and how to manage it. Patient association groups were also established in the five provincial cities, providing support to patients and their families.
Each city level haemophilia centre can now count on a team of skilled experts such as haematologists, nurses, laboratory technicians, physiotherapists, dentists and orthopaedists working closely with the patient association and local authorities to provide the best care possible to people with haemophilia.
“It is unfortunate to
have haemophilia,” shares Qiang Wang, who discovered he had
haemophilia A in 2004 when he had a bleed in his leg after running,
“but in Shandong we are lucky, because we have access to care and treatment.”
With a strong network in place, appropriate training and equipment, Prof Zhang and the project team were able to establish multidisciplinary haemophilia care in the five cities, bringing it closer to people with haemophilia living in the Shandong province. Driven by the inexhaustible motivation to improve haemophilia care beyond their region, the project team is now reaching out to people with haemophilia in the autonomous region of Tibet through the NNHF China 7 project.
National or regional leading centre
Beijing Union Medical College Hospital
Prof Zhao Yongqiang, Prof Chen Lixia, Prof Hua Baolai, Prof Li Kuixing
Tianjin Hematonosis Hospital
Prof Yang Renchi
Shanghai Ruijin Hospital
Prof Wang Xuefeng
Anhui Provincial Hospital
Prof Wu Jingsheng
The First Affiliated Hospital of Suzhou University
Prof Wang Zhaoyue
Beijing Children Hospital
Prof Wu Runhui
Shandong Province Qianfoshan Hospital: Zhang Ming, Tang Jianmin
Prof Zhang Ming, Prof Tang Jianmin
Shandong Mental Health Center: Qiu Huimin
Prof Qiu Huimin
Shandong Provincial Traditional Chinese Medical Hospital
Prof Bi HongYan