NNHF


NNHF News

On this page you can find out about the activities we are engaged in and keep up to date on how our partners are working to improve access to care for people with haemophilia and allied bleeding disorders. 

Our news covers all aspects of our work including the latest updates on our programmes, our campaigns and both local and global events.

To keep up to date on NNHF news,  subscribe to the NNHF newsletter.

 

Kenya 3: New clinic brings care to patients in Mombasa

07 June 2017

On 12 May, the first dedicated haemophilia clinic in Mombasa was officially inaugurated.  The clinic, located in Coast Provincial Hospital is just one of the achievements of the NNHF Kenya 3 project team, whose engagement with NNHF began with the first Kenya project in 2012.

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Increasing the reach of haemophilia care in Cambodia

08 May 2017

NNHF engagement in Cambodia began in 2011, when Robyn Devenish was granted the NNHF Community Award.  Robyn was together with Prof Chean Sophal a founding member of the Cambodian Haemophilia Association (CHA).  The following year, lab technician Sem Samey undertook a NNHF fellowship to improve the quality of diagnosis at the National Paediatric Hospital in Phnom Penh. 

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Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.

Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.


NNHF Project of the Year 2017 Award - Uganda 2 project

03 May 2017

The project partner Kisakye Agnes together with the team at Haemophilia Federation of Uganda (HFU) demonstrated outstanding dedication, excellent project management and stakeholder involvement which led to sustainable impact.

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Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.

Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.


NNHF Community Award 2017 - Lic Marión Echenagucia

03 May 2017

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America. 

Read more

Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.

Congratulations to Lic Marión Echenagucia, winner of the NNHF Community Award 2017!

This award recognises Lic Marión Echenagucia’s exceptional voluntary engagement and outstanding contribution to developing and strengthening diagnosis of bleeding disorders in Venezuela and across Latin America.


Malawi: The impact of teaming up for change

February 2017

Today, thanks to the joint efforts of a variety of local and international experts and engaged individuals, people in Malawi can receive haemophilia care at the Kamuzu Central Hospital in Llilongwe, where the first haemophilia clinic was officially inaugurated by the Ministry of Health in November 2016.

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Peru 2: Engaging social workers to support access to care

December 2016

In 2015, Carmen Castro Abad, who has FVII deficiency, was hospitalised for several weeks following a bleed. Whilst Carmen eventually received the care she needed during this period, the process of accessing this care was not an easy one. As many healthcare professionals did not have specialist knowledge of bleeding disorders, gaining the correct referrals and care was a lengthy process.

Read the final report of the Peru 2 project


International collaboration to improve MSK care in Thailand

December 2016

From 23-25 September, 11 participants including nurses, haematologists and paediatricians came together in Bangkok for a musculoskeletal (MSK) care training session.  The training is part of the NNHF Thailand 2 project, which aims to improve MSK care in Thailand.

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NNHF Project of the Year 2016 Award Winner

November 2016

Congratulations to the entire "Pakistan-5" Project team for winning the 2016 NNHF Project of the Year!

Led by Mr Masood Fareed Malik former President of the Pakistan Hemophilia Patients Welfare Society-NMO (PHPWS), this project has stood out as a shining example of a model NNHF project partner. 

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2nd Haemophilia Leadership Forum: One step forward in building successful partnerships to address national needs in haemophilia care

October 2016

The 2nd AvanceHemos Haemophilia Leadership Forum (HLF) brought together haemophilia experts and actors from 12 Latin American countries in Lima, Peru, to discuss needs, challenges and plans to improve haemophilia care in their countries.

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Latvia: A multi-sectoral approach to registry development

October 2016

The second NNHF supported project in Latvia focuses on developing a registry to monitor patient data and health outcomes, to improve the quality of care and treatment provided, whilst the Latvia 1 project focused on regional capacity building. 

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Salta, Argentina: Long-term dedication and commitment lead to sustainable impact

September 2016 

In August 2016, the health authorities of Salta Province, Argentina and the Haemophilia Foundation of Salta announced the establishment of a haemophilia service at the local hospital, dedicated to diagnosis and multidisciplinary care of people with haemophilia living in the province.

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Brazil 4: Better practice sharing across projects in Brazil

The NNHF Brazil 4 project is based in the state of Para, in the north of the country.  Known as the gateway to the Amazon, the state includes a number of islets.  With the haemophilia patient population spread throughout these islets and a lack of transport infrastructure, access to adequate care is difficult.


Malawi: Joint efforts begin to establish haemophilia care

In Malawi, it is expected that there are 1,800 people living with haemophilia. Of these, only 9 have been identified. This is because there are no facilities or trained staff in public hospitals to diagnose patients with haemophilia. With such a low number of identified patients, awareness of the condition is very low. 


Brazil 2: MSK data to lead to improved care across Brazil

Many people with haemophilia across the world are affected by joint damage and arthropathy.  In Brazil for example, 96% of those with severe haemophilia A live with severe joint damage due to a lack of musculo-skeletal (MSK) care.

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China 4: Building networks and establishing dialogue

NNHF programmes in China span 10 years and include 4 projects and 4 fellowships.  One of these is the China 4 project in Shandong.  The NNHF engagement with the Shandong team started with the China 2 project, which included training for the team at the Shandong Haemophilia Centre. 


Kenya 3: New Haemophilia Comprehensive Care Centre brings hope to patients and families in Nairobi

On 23 September 2015, the Haemophilia Comprehensive Care Centre (HCCC) at Kenyatta National Hospital in Nairobi was officially opened.

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Uganda: Building the basis for haemophilia care

In 2015, Uganda was selected as the NNHF annual global fundraiser.  Through donations made on World Haemophilia Day and beyond, a project is being funded to establish diagnosis and raise awareness of haemophilia throughout Uganda.

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Latest NNHF Activity Report launched

Find out about the latest completed programmes and ten years of NNHF impact creation.


NNHF Activity Report 2016

Download the report

 

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