Programme title: Creation of a cross-institutional and multidisciplinary care network to offer a comprehensive approach in the South of Buenos Aires province
Partner: CARDHE – Patient organisation and Haemophilia Healthcare Centre in Bahía Blanca
Represented by: Susana Garbiero, MD
Start/end date: March 2016 - October 2017
The project began with Doctor Susana Garbiero putting together a dedicated team of physicians, nurses, physiotherapists and social workers. They set out to further develop better care for people with haemophilia across the region of Southern Buenos Aires province. Care was generally centralised in Bahía Blanca, but the team saw great value in developing capability for basic care at the local level. Their approach was about more than a visit – it set out to build a lasting network of support. With a target of approaching schools and healthcare centres, they set out to achieve this challenging goal.
In the end, they achieved more than they ever dreamed possible. As the project gained momentum, it took on a life of its own. Take a look at the results.
- The team led 13 outreach visits to 8 villages. In total, they educated 131 healthcare professionals, 65 patients, 47 school teachers, and 80 students
- The project gained strong media attention, using local TV and radio to encourage attendance for their visits They created guides for managing haemophilia. Subjects include guidance for healthcare teams, for schools, dental care, and exercise
- They organised the first-ever haemophilia camp for young people and their families in the region. This camp, called “Happiness, adventure and freedom”, was held in Sierra de la Ventana and had 35 attendees.
However, the signature event of the project came on World Haemophilia Day. In partnership with the Dance School of Bahía Blanca, the CARDHE team organised a dance performance. This dance was an artistic portrayal of life with haemophilia and two people with the condition were included as part of the performance team. The performance was successful for multiple reasons: it was a captivating way to create awareness about bleeding disorders, it dispelled the stereotype that people with haemophilia cannot be active, and it was a highly-innovative way to gain community and media attention.
The Argentina 2 project is an example of what a team of dedicated volunteers can achieve when they work in true harmony to reach the same objective. They approached the project with admirable creativity and together created something unforgettable.