On this page you can find out about the latest activities we are engaged in and keep up to date on how our partners are working to improve access to care for people with haemophilia and allied bleeding disorders. 

Our news covers all aspects of our work including the latest updates on our programmes, our campaigns and both local and global events.

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Team up to reach out in 2019

31 January 2019

Throughout 2019, we are asking our partners to ‘team up to reach out’. This could mean collaborating with international or national experts, patient organisations, authorities, media – any stakeholder that could help bring haemophilia care to more people.

2018 highlights

21 December 2018

Watch our short film to find out how our partners teamed up to reach out in 2018. The NNHF team wishes you and your beloved ones a Happy Season's Holiday and a fantastic New Year!

Brazil 4: Bringing haemophilia care closer to home

05 December 2018

In 2015, in the state of Pará access to haemophilia care was available only in the state capital city of Belem. People with inherited bleeding disorders had to travel long distances, often by boat, taking many hours to reach care. In addition, people with haemophilia and their families living outside the capital city often lacked the adequate information to manage the condition.

New projects approved

22 November 2018

13 new projects have been approved by the NNHF Council at its last meeting on 15 November. We look forward to collaborating with our new partners as well as continuing the journey with existing ones to improve access to care for people with haemophilia.

Argentina 3: Planting the seeds of progress

21 June 2018

Buenos Aires has well-established haemophilia care where people with bleeding disorders are able to flourish. But Jujuy presented a very different landscape. In the province of Jujuy, people with haemophilia were often completely isolated from care. In many cases, they had not even been properly diagnosed and were living in an environment without any resources or support.

NNHF Activity Report 2018

Download the report here

Access to care

Introduction to NNHF

Watch our short film