On this page you can find out about the latest activities we are engaged in and keep up to date on how our partners are working to improve access to care for people with haemophilia and allied bleeding disorders.
Our news covers all aspects of our work including the latest updates on our programmes, our campaigns and both local and global events.
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05 December 2018
In 2015, in the state of Pará access to haemophilia care was available only in the state capital city of Belem. People with inherited bleeding disorders had to travel long distances, often by boat, taking many hours to reach care. In addition, people with haemophilia and their families living outside the capital city often lacked the adequate information to manage the condition.
22 November 2018
13 new projects have been approved by the NNHF Council at its last meeting on 15 November. We look forward to collaborating with our new partners as well as continuing the journey with existing ones to improve access to care for people with haemophilia.
21 June 2018
Buenos Aires has well-established haemophilia care where people with bleeding disorders are able to flourish. But Jujuy presented a very different landscape. In the province of Jujuy, people with haemophilia were often completely isolated from care. In many cases, they had not even been properly diagnosed and were living in an environment without any resources or support.
19 June 2018
The project began with Doctor Susana Garbiero putting together a dedicated team of physicians, nurses, physiotherapists and social workers. They set out to further develop better care for people with haemophilia across the region of Southern Buenos Aires province.
11 June 2018
Myo Aung has severe haemophilia A with inhibitors. He started using crutches three years ago, aged 32, due to joint damage in both knees caused by repeated bleedings. The haematology unit, led by Mandalay’s only haematologist Dr Moe Hein, is located on the first floor of the hospital. There is no lift.