On this page you can find out about the activities we are engaged in and keep up to date on how our partners are working to improve access to care for people with haemophilia and allied bleeding disorders.
Our news covers all aspects of our work including the latest updates on our programmes, our campaigns and both local and global events.
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The NNHF’s first regional Basic Coagulation Course for India and Sri Lanka is its biggest so far, with 15 participants. Find out more about this course as well as upcoming courses, and how you can get involved.
There are now four current or completed NNHF projects in India, and during a visit in February, members of the NNHF team met with two of these partners, as well as the patient association for Mumbai and the HFI in New Delhi.
The NNHF funded project in Nigeria aims to improve the very low diagnosis rate and improve care across the country. As well as setting up guidelines to raise the standard of care outside of Lagos, a number of workshops will be held throughout the one year project to train HCPS and educate patients and families. The first two workshops took place at the University Teaching Hospital in Lagos in March 2013 and kicked off this promising project.
The Panama project is well underway, with five out of six planned satellite clinics now in place. During the set-up process, HCPs from the satellite clinics attend a one-week training course in Panama City. Following this, the team from Panama City travel to the satellite clinics to support the implementation of the learning.
The Ministry of Health in El Salvador want to gain a clearer picture of the haemophilia situation in the country, so that they can respond with adequate care and include haemophilia in the healthcare agenda appropriately. This is why they are partnering with the NNHF for the first project in El Salvador. Focusing on equipping laboratories and offering quality diagnosis, the project will also train HCPs and provide education to patients.
We at the NNHF are delighted to announce the three winners of our World Haemophilia Day 'Get active for health' competition: Argentina (Salta), India and Ghana. Each winner will stage an event working with partners to promote the importance of exercise for people with haemophilia. Find out what they will do here.
“The experience was awesome. When you see the transformation in others it feels like magic." This was the feedback from participant Dhawal Bhanushali, after a youth leadership camp in India. It included workshops on project management and presentation skills.
Youth leadership was also the theme for one of three programmes taking place in the Dominican Republic. Find out more about all three programmes - a fellowship, project and award - here.
The NNHF is building up a global network of expertise through this international programme. Find out how e-learning, regional courses and a trainer network will support the improvement of quality diagnosis.
Patients, physicians and lab technicians are collaborating to improve haemophilia care in the country’s regions. Found out how these key players will collaborate and why volunteers are an important key to the project’s success.
The third NNHF project in Uzbekistan will decentralise haemophilia care in the country by strengthening centres in regions of Uzbekistan. Activities include educating haematologists and nurses as well as preparing the set-up of laboratories.
The NNHF promoted its 'Get active for health' activities at the World Federation of Hemophilia (WFH) World Congress 2012 held in Paris in July. Find out about our activities, including the 2012 Better Practice Sharing Forum and its panel of international haemophilia experts.
The NNHF is continuing to facilitate network building across China through its third project in the country. This project will focus on developing a national Quality Assurance (QA) scheme for laboratory testing and diagnosis.
The NNHF project in Shanxi province, China, was launched on World Haemophilia Day 2012. The project aims to provide education to patients and healthcare professionals, and improve diagnosis throughout the province.
Following a successful pilot in 2011, two Basic Coagulation Courses have so far taken place in 2012, in the United Kingdom in April and Mexico in June.
Meet our UK participants and find out what they learnt.
The NNHF’s first project in East Africa is now underway, following its kick-off on World Haemophilia Day 2012.
The project is being led by Academic Model for Providing Access to Healthcare (AMPATH), a non-profit organisation consisting of Moi University, Moi Teaching and Referral Hospital and a consortium of North American academic health centres led by Indiana University working in partnership with the Government of Kenya.
Keen to improve healthcare professional expertise in Latvia, an exchange programme was set up with Malmö Centre for Thrombosis and Haemostasis in Sweden.
The NNHF funded haemophilia centre in Skopje officially opened its doors on 14th June. The high profile event was attended by Macedonian Health Minister Nikola Todorov and attracted extensive media attention.
As the KwaZulu Natal project closes, another launches in South Africa in Eastern Cape. Read more about both projects.
Events in India and Brazil were funded by the NNHF as part of the NNHF’s World Haemophilia Day competition. Entrants were asked to propose an activity that promoted the benefits of exercise for people with haemophilia, with the two winning ideas being awarded a grant in order to carry out the activity. India's Yog-Sutra and Brazil’s Move on, you can! were the winners of the competition.
The NNHF was struck by the dedication of the team there during a visit in February.
The NNHF co-sponsored team of swimmers met for the first time to train in harsh conditions in Venezuela.
Read the full story to find out the latest about their journey to become a united team.
For the first time, 80 young men from haemophilia groups across India gathered for a leadership summit in Goa, India. Identified as having the leadership skills needed to mobilise their haemophilia communities, some participants undertook 3-day journeys to get there.
NNHF was honoured to be able to participate in this event - read the full story to find out more and meet some of the participants.
NNHF was delighted to present Robyn Devenish with her 2012 Community Award on a recent visit to Cambodia. Robyn explained how she would be using the award grant to expand haemophilia care in the country.
The multi-disciplinary team in Panama is busy getting activities for the second NNHF funded project underway.
Planned activities include healthcare professional training and a patient camp - read more here.
These are just a few of the reasons why the NNHF Council granted Cuba the NNHF Project of the Year Award 2011. Thanks to the tireless efforts of the Cuba project team, sustainable, decentralised haemophilia care for all of Cuba will soon be a reality.
This article describes how, through train the trainer workshops, collaborative working and media involvement, the project’s impact will continue beyond the formal project completion.
Making a change to the lives of children with haemophilia
Quality diagnosis gains momentum in China through the second NNHF supported project.
An NNHF fact finding visit shows confidence for better care in Ghana
Excitement and great adventures come to mind when reading the name Marco Polo. It is exciting to see the next wave of activities rolling over Venezuela.
Seeds set with our Community Award 2010 are showing first results in South Africa.
As part of the second NNHF project in Jordan a workshop took place on 15 January at the haemophilia education centre located at the Jordan University Hospital. Around 35 patients with their families were present.
