Desafío del Caribe swimming project6 February 2012

The NNHF co-sponsored team of swimmers met for the first time to train in harsh conditions in Venezuela.

Read the full story to find out the latest about their journey to become a united team.

Future leaders in Goa20 Jan 2012

For the first time, 80 young men from haemophilia groups across India gathered for a leadership summit in Goa, India.  Identified as having the leadership skills needed to mobilise their haemophilia communities, some participants undertook 3-day journeys to get there.

NNHF was honoured to be able to participate in this event - read the full story to find out more and meet some of the participants.

Community Award update - Leadership in South Africa22 December 2011

Being a young person in South Africa isn’t always easy in the new found democracy.  With high levels of unemployment, crime and poverty, it is not surprising that some young people become disillusioned especially in the previously disadvantage areas known as townships. Growing up with haemophilia can present another challenge for these young people.  The necessary social and healthcare services are not always accessible, access to financial resources are rare as food on the table is a priority and support networks and haemophilia awareness is virtually non-existent.

First Basic Coagulation Course proves a success22 December 2011

September 2011 saw the first ever NNHF funded basic coagulation training course.  Aimed at laboratory scientists relatively new to coagulation testing and seeking further expertise, the 3-day training took place at the Royal Free Hospital in London and was led by Dr Angus McCraw (pictured right).

Next steps in addressing needs in Cambodia22 December 2011

NNHF was delighted to present Robyn Devenish with her 2012 Community Award on a recent visit to Cambodia.  Robyn explained how she would be using the award grant to expand haemophilia care in the country.

Chile project - first results announced22 December 2011

As the NNHF project in Chile approaches completion, haematology doctors Dr de Soto and Dr Morales presented the achievements so far at a National Haematology Day.

An idyllic setting for best practice sharing22 December 2011

If you head for the Dominican Republic, it’s probably because you’re after some rest and relaxation on its tropical beaches, surrounded by the turquoise Caribbean Sea. However, this isn’t what the delegates of CARS (Central American Association of Research and Study) had in mind when they travelled to the country in September.

Stretching out in Honduras22 December 2011

At a ‘Stretch Out’ event, four physiotherapists supported by Dr Pena, a haematologist, showed 20 participants (patients and family members) how to use stretch bands to do exercises adapted to their condition.

Snapshot of achievements in the Middle East22 December 2011

NNHF had the opportunity to share best practice at the Lebanese Society of Haematology congress in October. Showcasing projects in the region, NNHF presented snapshots of achievements made thanks to the dedication and hard work of the respective project partners.

Spreading knowledge in Mexico22 December 2011

During a 3-day workshop, 35 healthcare professionals from 6 hospitals from across Mexico learned more about haemophilia, its clinical manifestations, musculoskeletal complications and more which will enable them to offer better care to the patients in their regions.

Haemophilia takes centre stage in Morocco22 December 2011

A creative approach to raising awareness of haemophilia is being taken in Morocco.  Working with a group of haemophilia patients, Mr Alaoui, a professional playwright – who has haemophilia himself – is devising a play that will literally provide a stage for people with haemophilia to tell their stories.

Busy start for second NNHF Panama project22 December 2011

The multi-disciplinary team in Panama is busy getting activities for the second NNHF funded project underway.

 

Planned activities include healthcare professional training and a patient camp - read more here.

 

First NNHF project for Philippines22 December 2011

On its first visit to the Philippines, NNHF gained an insight into the haemophilia situation and began the first steps in developing programme ideas tailored to the country’s needs.

New National Treatment Guidelines for Serbia22 December 2011

Just a few months after the project started, the NNHF project in Serbia presented its National Treatment Guidelines at the Serbian Haematology Congress in November.

Fact-finding in the Eastern Cape22 December 2011

A fact-finding visit to the Eastern Cape was undertaken in November, to understand the local haemophilia situation and identify ideas for a potential new project in 2012.  The NNHF hopes to apply some of the learning gained from its project already taking place in KwaZuluNatal, whilst realising that a one-size-fits-all approach is not necessarily the solution when it comes to improving haemophilia care.

Bringing care closer to home in Ukraine22 December 2011

48 haematologists from 23 Ukraine provinces and Kiev City came together for a 5-day workshop in September.  The workshop was delivered by Dr Moroz and her team, whose wealth of experience led them to create the first comprehensive manual on haemophilia in the Ukraine which was highly praised by the majority of recipients.

Taking a joint approach in Vietnam22 December 2011

For the first time, haemophilia treating physicians from across Vietnam – from Hanoi to Ho Chi Minh City - came together for a workshop.  Each presented the care approach in their respective region to set a basis for discussion of common challenges and related action.

NNHF Community Award 2011 - a maker of miracles1 September 2011

How can one woman change the outlook for haemophilia care for a whole country?  Medical laboratory scientist Robyn Devenish, winner of the Novo Nordisk Haemophilia Foundation Community Award 2011, has dedicated the last ten years to doing just that in Cambodia.   

Project of the Year 2011 - sustainable care in Cuba1 September 2011

"The team’s ambition level never fell, in spite of the fact that quite a few obstacles appeared during the project period.”

These are just a few of the reasons why the NNHF Council granted Cuba the NNHF Project of the Year Award 2011. Thanks to the tireless efforts of the Cuba project team, sustainable, decentralised haemophilia care for all of Cuba will soon be a reality. 

 

Involving everyone to make a change in Ukraine1 September 2011

Creating a strong network is the starting point to improving haemophilia care in Ukraine.  At the kick-off meeting of this NNHF project led by Dr Galyna Moroz, 46 key stakeholders found out what role they will play in the project. 

 

Getting a better picture of the situation in Honduras1 September 2011

As work gets underway on setting up a new national patient registry, Dr Armando Peña Hernández explains what’s involved when it comes to painting a clearer picture of the haemophilia and allied bleeding disorders situation in Honduras. 

 

What lies ahead for haemophilia care in Brazil?1 September 2011

A packed agenda included fact-finding and celebration on a recent NNHF trip to Brazil.  From kicking off the second NNHF project to visiting blood banks, the visit provided a glimpse into what lies ahead for haemophilia care in Brazil.

A life remembered, a legacy continued1 September 2011

The NNHF is proud to be working closely with the Claudio Luiz Pizzigatti Correa Hemocentre as part of its second project in Brazil.  The centre is part of the health sciences campus of UNICAMP, the University of Campinas.  Here, Claudio’s sister explains the fascinating and moving story of how the centre came to be named after her brother.

 

Local knowledge sharing leads to international recognition1 September 2011

After its successful nationwide implementation, the third NNHF project in Pakistan was completed in June 2011.  This national project focused on skills development and awareness towards improved preventive care.

This article describes how, through train the trainer workshops, collaborative working and media involvement, the project’s impact will continue beyond the formal project completion. 

Desafío del Caribe - facing the challenge in Mexico and Venezuela8 August 2011

A group of 19 young Venezuelan and 16 Mexican haemophilia patients have started a great challenge: They are training hard to qualify and be one of the 20 swimmers to cross the sea from Isla Mujeres to the bay of Cancun in Mexico in June 2012. 

Park for children with haemophilia opens its doors in Islamabad17 April 2011

Making a change to the lives of children with haemophilia

Follow-up training in laboratory diagnosis in China25-27 February 2011

Quality diagnosis gains momentum in China through the second NNHF supported project.

Ghana - Spread the news about haemophilia26 February 2011

An NNHF fact finding visit shows confidence for better care in Ghana

Marco Polo - discovering the way to quality diagnosis for Venezuela30 January 2011

Excitement and great adventures come to mind when reading the name Marco Polo. It is exciting to see the next wave of activities rolling over Venezuela.

NNHF Community Award 2010: A Success story25 January 2011

Seeds set with our Community Award 2010 are showing first results in South Africa.

Strong leadership engaging the community15 January 2011

As part of the second NNHF project in Jordan a workshop took place on 15 January at the haemophilia education centre located at the Jordan University Hospital. Around 35 patients with their families were present.