NNHF Community Award 2011

A maker of miracles

pictureHow can one woman change the outlook for haemophilia care for a whole country?  Medical laboratory scientist Robyn Devenish, winner of the Novo Nordisk Haemophilia Foundation Community Award 2011, has dedicated the last ten years to doing just that in Cambodia.

When Robyn left her native Australia to work as a volunteer in Cambodia’s Angkor Hospital, there were no known haemophilia patients in the country. Robyn established the country’s first diagnostic laboratory, developed practical and theoretical training programmes for laboratory technicians and translated patient information booklets into Khmer, the local language.  In 2007, Robyn and her colleagues set up the Cambodian Haemophilia Association. Soon afterwards, Robyn instigated a national registry of all patients with bleeding disorders.

So far, 71 patients have been diagnosed in Cambodia - and the country is now equipped to help them, thanks to Robyn’s efforts.

“Her work and contributions are nothing short of a miracle,” says Yukio Ozaki, council member of the International Society on Thrombosis & Haemostasis (ISTH) and executive officer of the Asian-Pacific Society of Thrombosis and Haemostasis (APSTH).

Personal engagement

The NNHF Community Award is a peer-nominated honour which recognises how Robyn’s many years of outstanding personal engagement have benefitted the haemophilia community.

“In addition, her work in improving diagnosis and registries reflects one of the NNHF’s key focus areas,” says Susanne Brandl, General Manager of NNHF. “75% of people with haemophilia live in the developing world, many without access to adequate care.  Establishing accurate diagnosis is the starting point in addressing this,”

Important steps

In accepting the award, Robyn notes that the NNHF Community Award will strengthen haemophilia care in Cambodia.

“We still have a long way to go to improve haemophilia care, but this award will allow our team here to take important steps to achieve this,” she says.
Future plans include setting up coagulation testing at two more hospitals and training more laboratory staff in screening and diagnosis. Part of the award will also be donated to the Cambodian Haemophilia Association so that it can build a stronger network and increase its dialogue with the Ministry of Health.

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