Hagedorn Research

Creating awareness together

In most developing and emerging countries, awareness of haemophilia and allied bleeding disorders is very low. Through awareness creating activities we join hands with the community worldwide to change this.

Stretch Out for Haemophilia – using thera-bands to aid exercise, this campaign raises awareness of the benefits of appropriate exercise for people with haemophilia

Desafio Orinoco 2010 - NNHF sponsored a team of swimmers with haemophilia to complete a 3.1 km swim.  Participants reported better joint articulation and increased self-esteem

Desafio del Caribe 2011/2012 – after the success of Desafio Orinoco, NNHF is now helping to bring together two teams of swimmers from Venezuela and Mexico to complete a 10 km swim.  The results of ongoing medical assessment will be published after the project.

If you want to support our awareness activities, get in touch with us today. Or spread the word in your community and organise a Stretch Out activity or swimming event.

Become an ambassador for better haemophilia care

Are you excited about the achievements of NNHF programmes? Volunteer as an ambassador and promote our collaborative approach to development work in your community.

Share documents & media with community members, to showcase examples of our work and to direct people to our programme guidelines and forms

Find potential project partners or strong local community leaders

Identify candidates for a fellowship or the NNHF Community Award

Help us search for an internationally recognised haemophilia centre that could train a NNHF fellow 

Link us with dedicated individuals who want to make a difference to the lives of people with haemophilia and allied bleeding disorders.

Back to Get Involved

Latest news

December 2016
Peru 2: Engaging social workers to support access to care
Read the final report of the Peru 2 project

December 2016
International collaboration to improve MSK care in Thailand
Read more

November 2016
2016 NNHF Project of the Year: Pakistan 5
Read more


More NNHF news