NNHF


Mexico 3 educational materials

The Mexico 3 project team developed the "Mi hemofilia" app for iOS and Android. The app provides useful information about haemophilia and guides children on how to exercise at home.

Additionally, the project team, lead by Dr Io Daiela Castillo and her team from the Hospital Infantil de México Federico Gómez (HIMFG) in collaboration with the Instituto Nacional de Pediatría (INP) of Mexico City, produced comprehensive educational material for children with haemophilia: a manual, an exercice guide, a haemophilia ID card and a school booklet.

All the material developped by the Mexico 3 project team is available for download here below. If you find it useful and wish to use it in your country we kindly ask you to mention the source as follows: "Material developed as part of the NNHF Mexico 3 project with the support of Novo Nordisk Haemophilia Foundation". 


"Mi Hemofilia" App

"Mi Hemofilia" App for Apple devices - Apple Store: Install
(Requires iOS 9.3 or later. Compatible with iPhone, iPad, and iPod touch.)

"Mi Hemofilia" App for Android - Google Play - Install
(Requires Android 4.0 and up)

The content of the app is available in English and Spanish. 

If you wish to see additional languages made available contact us.

Manual 

Getting to know my haemophilia - Download the English version

Conociendo mi hemofilia - Descarga la versión en español 

Exercise guide

    

Download the Haemophilia exercise guide in English

Descarga Hemofilia - Guía de ejercicios para hacer en casa en español 

 

 

School booklet (in Spanish)

Descarga "La hemofilia y mi escuela" en español

Patient diary

Carnet del niño con hemophilia  - Descarga la versión en español

    

 

 



Videos in Spanish - 2017

Dr Io Castillo teamed up with other HCPs from Hospital Infantil de México Federico Gomez and from the National Paediatric Institute as well as patients and their families to change MSK care and decrease functional limitations.

Lic Carla Eileen Lopez Herrera, physiotherapist at the Hospital Infantil de México Federico Gómez (HIMFG) shares how, thanks to physiotherapy and physical activity, children with haemophilia recover their strength and joints health, allowing them to better manage daily activities.

Dr Belmont, paediatric physiatrist from Hospital Infantil de México Federico Gómez (HIMFG), showcases the importance of working all together teaming up for change in MSK care.

Patricia Altamirano, mother of two boys with haemophilia, sees a huge positive impact in her children’s lives after having been part of the rehabilitation programme.

Dr Isunza, from Istituto Nacional de Pediatria sees the work of the multidisciplinary care team in haemophilia as an example to be followed by other disease areas.

"It is rewarding to have the confirmation that we are working well and we have good results," says Dr Garcia Cruz. She is pleased to observe the positive impact of the rehabilitation activities for children with haemophilia, as they gained strength, mobility and functionality.

Erick would like to motivate other people with haemophilia to do exercise, based on his learnings and improvements after the MSK programme he took part in - watch the video in Spanish.

Dr Lourdes González Pedroza explains how the MSK project supported by NNHF helped her to team up with other healthcare professionals to improve their patients’ lives.

Dr Isunza, from Istituto Nacional de Pediatria sees the work of the multidisciplinary care team in haemophilia as an example to be followed by other disease areas.

Watch the final video from the NNHF Mexico 3 project showing the results and conclusions from several perspectives, as well as the celebration after 2 years of hard work. Congratulations to all who have teamed up for change!



Videos in Spanish (2016)

Dr Io Daiela Castillo, NNHF project partner shares her motivations to lead the project and her expectations to improve mobility and joint health in children with haemophilia.<

Carla Eilén López Herrera, physiotherapist at the Hospital infantil de México Federico Gómez (HIMFG).

Dr Toribio Gomez, orthopaedist from Venezuela shared his experience with the Mexico 3 project team to help them improve quality of life for children with haemophilia in Mexico.

Dr Lourdes González Pedroza haematologist at the Instituto Nacional de Pediatría shares the impact of a multidisciplinary approach for children with haemophilia.

Naiari Fernandez, physiotherapist from Venezuela teamed up with the Mexico 3 project team, sharing her knowledge on how to prevent functional limitations in children with haemophilia.

NNHF are supporting numerous projects and fellowships througout the world.